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We just got a dementia diagnosis

What to do in the first month, and what can wait longer than you think.

Quick answer

What to do in the first month, and what can wait longer than you think.

HomeBy SituationWe just got a dementia diagnosis

The first month after a diagnosis is mostly about slowing down. Very little has to be decided immediately.

Short answer

What to do in the first month, and what can wait longer than you think.

What to do, in order

  1. Slow down. Very little has to be decided this month.
  2. Get the specific diagnosis. Alzheimer's, vascular dementia, Lewy body and frontotemporal dementia progress differently and respond differently to medication.
  3. Do the legal work now, while capacity is clear. Power of attorney, medical power of attorney, directives.
  4. Call the Aging & Disability Resource Center serving your county. Milwaukee, Waukesha, Ozaukee and Washington counties each have their own dedicated ADRC -- see the free-help block above for phone numbers.
  5. Understand what memory care will require later. Wisconsin requires neither a separate certification nor a disclosure form for memory care -- ask to see the community's DHS program statement listing dementia as an admissible client group instead.

Questions families ask

What's the difference between hospice and palliative care?

Palliative care focuses on comfort and symptom relief and can be provided alongside curative treatment at any stage of a serious illness. Hospice is specifically for patients who have stopped curative treatment and have a physician-certified life expectancy of six months or less if the illness runs its normal course.

What's the difference between 'home health care' and 'non-medical home care' in Wisconsin?

Home health care involves skilled, licensed clinical services (like nursing or physical therapy) typically ordered by a physician, often covered in limited circumstances by Medicare. Non-medical home care (companion care, personal care assistance) is unlicensed the way facilities are, and generally paid out of pocket or through Family Care/IRIS.

How are in-home caregivers screened and supervised in Wisconsin?

Because non-medical home-care agencies aren't licensed the way CBRFs or nursing homes are, screening and supervision practices vary by agency -- ask any agency directly about background-check procedures, caregiver training, and how a supervisor monitors care quality after placement, since there's no single state standard to check against.

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