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We just got a dementia diagnosis

What to do in the first month, and what can wait longer than you think.

Quick answer

What to do in the first month, and what can wait longer than you think.

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The first month after a diagnosis is mostly about slowing down. Very little has to be decided immediately.

Short answer

What to do in the first month, and what can wait longer than you think.

What to do, in order

  1. Slow down. Very little has to be decided this month.
  2. Get the specific diagnosis. Alzheimer's, vascular dementia, Lewy body and frontotemporal dementia progress differently and respond differently to medication.
  3. Do the legal work now, while capacity is clear. Power of attorney, medical power of attorney, directives.
  4. Call the Aging & Disability Resource Center serving your county. Milwaukee, Waukesha, Ozaukee and Washington counties each have their own dedicated ADRC -- see the free-help block above for phone numbers.
  5. Understand what memory care will require later. Wisconsin requires neither a separate certification nor a disclosure form for memory care -- ask to see the community's DHS program statement listing dementia as an admissible client group instead.

Questions families ask

Who licenses and regulates senior care facilities in Wisconsin?

The Wisconsin Department of Health Services (DHS), Division of Quality Assurance (DQA), Bureau of Assisted Living (BAL) licenses and regulates CBRFs, RCACs, adult family homes, and nursing homes statewide. General licensing contact: 608-266-8482.

What happens if I have a complaint about a Milwaukee-area facility's care?

A complaint about a licensed facility's quality of care can be directed to DHS's Bureau of Assisted Living (608-266-8482), and residents of licensed long-term-care facilities can also contact the Wisconsin Board on Aging and Long-Term Care Ombudsman Program at 1-800-815-0015.

Does Wisconsin have a separate memory-care license or certification?

No. Wisconsin requires neither a separate memory-care state certification nor a formal statutory disclosure-statement requirement specific to dementia care. What's marketed as 'memory care' is almost always a CBRF or RCAC that has documented dementia as an admissible client group in its DHS program statement.

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